6 Comments »

I have been a sufferer of RLS associated with PLMD. It has been truly devistating. My symptoms have become quite severe over the past year. Many simply don’t understand just what effect it does have. And I have no doubt the disorder is genetic, as my mother has had symptoms for years, as have one of my sons. If they want to do a story, let it be more of the cause, which at this point is largely unknown. They are playing a guessing game, and to me that’s irresponsible journalism. The fact is, there aren’t many facts. Why needlessly arm people with vague information. It’s insulting.

How many cases of RLS have you seen? How many have you missed?….

No clue …right……? The frequency of the gentetic variant in US and ICeland is 65% where we estimate prevalence of 8-12%. In Asian (at least according to HAPMAP data—do you know what that is?)…..the frequency of the variant is 35% at most. Interestingly, the best data on prevalence in Asia of RLS are 2-4.3% dependent on age. WOW!—suprisingly the gene variant frequency and actual disease frequency correlate…..not coincidence. Science and the human genome do not function in mysterious manners…..but opinion does. Remember Hippocrates….”in, fact there are two things….science and opinion…the first begets knowledge….the latter ingorance.”

d

I totally agree with your opinions about NBC news. After all its about ratings i.e. money. They don’t care much about news. My wife is a physician and has had RLS for many years as did her mom. It is a big problem in that it takes away the resting/sleeping phase of one’s life and the effects carry over into the work day.

I hope someone will soon discover the cause and the cure for RLS. It is urgently needed. Where are you Candace Pert?

i am a 52 year old female, registered nurse, who’s suffered with RLS since the age of 25. early on, my condition required no more than a hot bath to “settle down” my legs. it was an intermittant problem, maybe surfacing one evening every several weeks.

i didn’t know the name of the condition until it worsened, during my first pregnancy, at age 28. in researching my symtoms i came across the term RLS and learned that many people with pernicious anemia suffer with the condition. as my iron was low during the pregnancy, i tried supplements, and experienced minimal relief. once my son was delivered the symptoms stopped, overnight.

over the years, then, i’d have trouble on and off. my father has symptoms of RLS as do my 2 of my 4 sisters, and 2 of my 4 brothers.

lately, i’ve had worsening RLS to the point of being unable to fall asleep until 4 or 5 in the a.m. i’ve considered medication, but am reluctant to start something. for now, i continue on iron supplement as i think that is the root of my problem.

i was happy to see the news report about RLS. its encouraging to see, scientifically, that there is such a condition/syndrome. hopefully there will be more research and work devoted to finding out the cause, and for treatment.

Whether the news coverage is well-done or not, I am glad to see some attention to this disorder. Why don’t these people with all the criticism of the coverage write something more complete and more well done? I’ll certainly read it. I’ve had RLS for 30 years, and PLMD for a good part of that time and observed it in my father and his father. It is infuriating to have to fight every night to do something so natural and so necessary. To the critics, “How long do you walk the planks each night?” Much more attention is needed in the study of sleep disorders. I was drowsy driving in the afternoon, which is what precipitated my effort to get some help.

I used to have RLS. Drove me crazy and interfered with my getting enough rest. It went away completely when I cut back on eating carbs, along with 17 kg (37 lbs)!

How did human beings survive for so long without all these wonder drugs?

Your comment

Name (required)

E-Mail (Required, not published )

Website

HTML-Tags:
<a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <code> <em> <i> <strike> <strong>